Tuesday, 15 August 2017

Charlie Gard's parents have announced they will use the £1.3 million donated by well-wishers to set up a 'Charlie Gard Foundation' to help other children with rare diseases. 
The cash was raised in barely more than two months, earlier this year, on a GoFundMe online appeal to raise money for his treatment.
Charlie's legacy will be to help other children after the cash donated by tens of thousands of people could not help him before he died last month.
His parents Chris Gard and Connie Yates said today: 'We feel that the foundation will be a lovely legacy for Charlie, and we hope that you will all continue to support us in honouring the life of our little warrior as he helps other poorly children and their families'. The couple had appealed for cash to cover Charlie's medical bills on a GoFundMe page more than six months ago. 
More than 84,000 people have donated money.
'Our beautiful Charlie has been blessed with hundreds of thousands of supporters from around the world. We are so incredibly grateful for all your continued love and support, and would like to take this opportunity to advise you of what we shall be doing with the money raised for Charlie's cause,' said the couple in a statement posted on a GoFundMe page. 'In the following weeks we will be setting up The Charlie Gard Foundation: a foundation that will help other children with mitochondrial diseases, and rare childhood illnesses.
'Too many children are losing their fight against rare medical conditions, which emphasises the need for more research, and we hope we can help deliver this through Charlie's foundation.
'We also intend on becoming a hub of information for parents that may find themselves in a situation like ours. There needs to be more clarity for parents about parental rights when it comes to making life-saving decisions about their children.
'Access to medical treatment, and expert clinicians, should never be denied if funds are available. We will be looking at ways in which we can help make things clearer for families and hospitals alike'. Charlie's plight saw thousands of supporters - known as Charlie's Army - lending their voices and money to see the child given treatment, with £1.35 million raised on an online fund-raising site. 
Grant Armstrong, for the family, told the High Court: 'Charlie has waited patiently and peacefully for his right to receive treatment to be realised. Sadly, due to the considerable delay…the window of opportunity has been lost for Charlie.'

'His legacy will be to support other young children and families faced with similar circumstances.'
A luxury car salesman who plotted a 'steal back' scam of nine cars worth more than £200,000 wept in court after he was jailed for five years.
Michael Daniels, the head of sales at the BMW Berry showroom in Chiswick, west London, kept a spare set of car keys after selling the vehicles to unwitting customers.
The 40-year-old then used the company database to find the addresses of his soon-to-be victims, and would then hand the spare keys over to accomplices Alex Tingle and Vincent Murphy.
Tingle and Murphy then traveled to the homes of new car owners and stole back the cars over a six-week period from December 2015 to February 2016.
The number plates on the stolen vehicles were changed and given to a man known as 'Ali' in a north west London car park, never to be seen again.
The court heard how one victim, Robert Mitchell, missed the birth of his daughter as he was was unable to make it to hospital after their car was stolen on Christmas eve, while another victim Nouman Hashmi said the theft left him and his wife unable to sleep. 
Police unraveled the criminal plot after identifying Tingle from CCTV footage of a BMW being stolen from a warehouse.  
Prosecutor Ben Holt told Isleworth Crown Court that Tingle, 28, confessed to the scam after being caught by police, which lead to the arrest of the mastermind of Daniels. 'He was providing a kit to Alex Tingle, which involved the keys and details of the victims, including the customers home address.
'Tingle and Murphy drove to the address with the keys and then drove away.
'Nine vehicles were stolen in total, to a value of £210,000.'
Judge Simon Davis said Daniels' plot was a 'horrendous breach of trust', adding: 'This was a conspiracy to steal high value motor cars from the BMW dealership in Chiswick.'
Tingle admitted to admitted conspiracy to steal motor vehicles and was jailed for two years. He also received two months concurrent for possession of Class A drugs. 
MPs are set to review the ‘bonkers’ Big Ben plan after claiming they didn’t know the famous bell would be silenced for four years.
Three Parliamentary committees are said to have agreed on the work before it was given final approval by the House of Commons Commission, chaired by Speaker John Bercow.
But last night MPs insisted they had no idea they were signing off on a plan that would silence the Great Bell’s bongs for four years because of health and safety concerns.
They expressed anger at the length of time allocated to refurbish the Elizabeth Tower, which will silence the bells to protect workers from hearing damage, with Tory MP Nicholas Soames saying: ‘Tell those poor little darlings to put headphones on.’
Brexit Secretary David Davis also waded into the row, saying that stopping the chimes was ‘mad’ and urging the Parliamentary estate’s authorities to ‘just get on with it’.
In the face of the growing revolt, Liberal Democrat MP Tom Brake, the spokesman for the Commons Commission, said he would ask for the plans to be reviewed. 
‘Following representations that have been made, I will ask the commission whether it will look again at whether more extended bell-ringing is an option that is both mechanically and financially viable.
‘Clearly there is a means of doing it (having the bells ring more often) because there is a commitment to ensuring the bells ring on New Year’s Eve. Mr Brake insisted that while the refurbishment plans had been brought before the commission, the specifics – such as Big Ben being silenced for four years – had not been discussed or signed off.
The plans to silence Big Ben, which has rung out reassuringly for more than 150 years, even during times of war, sparked an outcry when they were revealed on Monday. The £29 million, four-year facelift will repair cracked masonry in the Elizabeth Tower that houses Big Ben, while the clock mechanism will also be serviced. 
The bells will sound only on occasions such as New Year’s Eve and Remembrance Day.
The Parliamentary authorities said it would be ‘unacceptable’ to expose workers on scaffolding surrounding the tower to the noise of the chimes – and also ‘unacceptable’ for them to wear ear defenders. 
EU health and safety rules dictate that ear defenders can be used only as a last resort in the workplace.
But Mr Davis dismissed the health and safety concerns, telling LBC Radio: ‘I think it’s mad.
‘There’s a sort of rude phrase which I will shorten to “just get on with it”. When I was in business, it was my standard line – “just get on, just do it, don’t faff”.’
Mr Soames, the grandson of war-time prime minister Winston Churchill, added: ‘It is a tremendously defeatist decision in an age where the technology exists to recreate the sound of Big Ben completely authentically and on time.
Footage of the moment 12 people were killed by a falling tree during a religious festival on the Portuguese island of Madeira has emerged this afternoon.
At least 50 people were injured, including a baby in a pram, when the 200-year-old oak came down over dozens of revellers waiting to buy candles outside a church.
The incident took place at the Festa da Senhora do Monte, a festival celebrating the island's patron saint in Monte, a village near Madeira's capital Funchal.  
  • At least twelve people dead and dozens injured at festival on Madeira
  • Portuguese media reports more than 50 people injured, including a baby 
  • A large tree fell down on a crowd outside a church after a mass.   Video filmed by a witness shows the crowd enjoying themselves before a large creaking noise can be heard, followed by moments of panic as the tree comes down, sending up a shower of dust and debris.
    Seconds later people - one man with a baby in his arms - could be seen sprinting for safety amid uncertainty at what had happened.
    Others who had loved ones near the spot where the tree came down could be seen running towards the scene of the tragedy.  The tree that came down is understood to be in an area where candles were being sold, meaning it was packed with people.  
    A witness who was selling candles near to the spot where the tree fell, told Portuguese TV station SIC: 'It felt like gunshots at first.
    'We just saw people trying to run away, jumping on top of others, and then the tree fell and I saw six people already lying motionless on the ground. It was something that will mark me for the rest of my life.
    'I only had time to run with all the panic. Some people were hit by others. It was terrible.  The local, who was not named, added: 'The procession was leaving the church and a lot of people were at the spot where the tree fell buying candles to follow the procession.
    'I would say hundreds of people were there.'
    Several people are said to have been taken to the island's Nelio Mendonca Hospital with 'fractures and head injuries.' 
    The traditional procession which forms part of the festival, held annually in celebration of the patron saint of Madeira -  Nossa Senhora do Monte - has been cancelled. 
    There is no information at this stage on the nationalities of the dead and injured, but the festival is known to attract an international crowd.
A married City trader has jumped to his death from the seventh floor of the London Stock Exchange today.
Witnesses have said the man, who has not been named but is described as a middle-aged Londoner landed in the lobby of the building, which has been screened off.
The finance worker is believed to work on the first floor but climbed up to the seventh floor at around 9.45am, clambered over a glass barrier and jumped.
Police were called at 9.58am and the man was pronounced dead at 10.10am - the Paternoster Square entrance of the LSE is shut and police and ambulance staff are at the scene.
Officers say his death is not suspicious and are desperately trying to contact his wife and family today. A fellow broker explained: 'I came in this morning and there was a screen up in the reception lobby area and ambulances and police.
'There was an internal memo saying there had been an incident and then we have found out that a man has jumped from the seventh floor.
'The building has walkways on each floor and near the lifts there is a gap and you can see all the way up and down.
'Apparently he jumped from there.'
A student, who was waiting in security, told the Evening Standard: 'My friends inside told me they heard a lot of shouting and then they heard a thud. It's awful.'
The financier is believed to have been working on the first floor before heading up to the seventh floor.
The man, believed to be London-based and middle aged, threw himself from an internal walkway.
A witness said: ''When he hit the floor it was terrifying'. His colleagues were said to be devastated this morning, with several having been sent home.
Police are desperately trying to contact the man's wife to inform her of the incident.  Workers said that the 7th floor was full of conference rooms and no firm was based there.
A City of London Police spokesman added: 'We were called to the London Stock Exchange in Paternoster Square on Tuesday, 15 August at 9.58am to a report of a man who had fallen from an upper floor in the building to the ground.
'London Ambulance Service attended and the man was pronounced dead at 10.10am.
'The City of London Police is currently investigating the circumstances around the death and the incident is being treated as non-suspicious.
'We are now working to inform the man's next of kin.' 
A London Stock Exchange Group spokesman added: 'We can confirm an incident this morning where a London Stock Exchange Group colleague fell from an upper floor balcony and died.
'The emergency services were called immediately and are dealing with the incident. We will continue to offer them every support and cooperation possible.
'Our thoughts and condolences are with the family and friends of our dear colleague.

At least 309 police officers and police community support officers in the UK have been convicted of offences in the last three years, figures show.
The offences that led to convictions include sex crimes, assaults and possessing indecent images of children. 
However, only 25 of the 45 forces gave figures to the Press Association after a Freedom of Information request.
A Home Office spokesman said measures had been introduced to improve standards of behaviour in the police.
The 20 forces that did not provide information either said they could not reveal the number of convictions because of the cost of retrieving the information, or did not respond to the request.
Police Scotland and the Police Service of Northern Ireland were among those not to provide the information.
Separate figures obtained from 18 forces showed that there are at least 295 officers and police community support officers (PCSOs) with convictions who are currently serving with the police.

'Appropriate action' 

The Home Office spokesman said: "The vast majority of police officers in this country do their job honestly and with integrity. They put themselves in harm's way to protect the public. 
"But the good work of the majority threatens to be damaged by a continuing series of events and revelations relating to police conduct.
"Over the last two years the Home Office has introduced a programme of measures to improve standards of behaviour in the police, including making the disciplinary system more independent and transparent through introducing hearings in public, preventing officers resigning or retiring to avoid dismissal, and - from next year - introducing legally qualified, independent chairs on misconduct hearing panels."
Police forces did not tell the Press Association the names of officers who had been involved in crimes, saying that it would breach data protection laws to identify them. What the figures demonstrate is that, proportionately, the number of "rotten apples" in the police barrel is very small. 
You might expect that, given that police are meant to enforce the law rather than break it, but sometimes newspaper headlines suggest the opposite. 
However, the refusal of so many police forces to provide conviction data is more troubling. Surely it's in each constabulary's interest to keep tabs on employees with a criminal record - and surely it's in the public interest for us to know, for, as Home Secretary Theresa May has recently reminded us, the police are the public and the public are the police. 
The College of Policing has begun releasing details of the number of officers who leave the service for disciplinary reasons. Perhaps the College, the body which sets ethical standards for the service, should start collecting and publishing conviction data too. 


A line

Among the forces to provide figures to the Press Association:

    A factory worker now earns £5,000 a year from social media work after Kim Kardashian tweeted him four years ago.
    Jerome Billingham packed laundry for a living when he tweeted Kim the innnocent tweet. 
    He replied to one of her posts, saying: 'Do you notice your fans? I love you loads! #hotlove' to which she replied: 'Love you too!' Within a week, his 200 followers had surged by 20,000 and he now has more than half a million on his two Twitter accounts. His main account gets six million views a month.
    Clothing companies began sending him free clothes at his family home in Louth, Lincolnshire, and dozens of other businesses begged him to promote their goods.
    He estimates he now makes £5,000 a year tweeting about high street companies, such as Primark, to his 269,000 followers as well as promotional work for E4. 'I didn't think anything of it and was walking to work and then my phone just started going ping ping ping and going crazy.
    'I thought: "What the hell's happened?" and actually wondered if there had been a technological fault with my phone but then I saw hundreds and thousands of replies saying: "Congratulations, well done son".
    'Kim had tweeted me back saying: "Love you too". 
    The social media star also has another account where he has 274,000 followers, meaning his total followers on the social media site is more than half a million followers. In addition to his clothing plugs, he gets into clubs and given alcohol for free for tweeting about them. 
    Kim has a staggering 54 million followers and her single tweet to the starstruck man has allowed him to forge a new career.
    Although he now works for Haven Holidays he soon hopes to concentrate full time on social media. 
    His celebrity followers include boxer Tyson Fury, 29, and X Factor winner Sam Bailey, 40.
    He got into Keeping Up With The Kardashians five years ago and has always fancied social media star Kim, 36.
    He said: 'I have had so many people reach out and offer sponsorship.
    'Lad Bible and Boohooman wanted me to work for them. 
    'I did campaigns for E4's Tattoo Fixers, Primark's Christmas range, they'd sent me stuff and pay me almost £100 a tweet.

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